Myotonic Dystrophy Foundation (MDF)

Our vision is a world with treatments and a cure for myotonic dystrophy. MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world.

Myotonic Dystrophy Patients’ Group of Japan (DM-family)

Myotonic Dystrophy Patients’ Group of Japan, commonly known as DM-family, was established in 2016.

Until then, there had been no patient group exclusively for myotonic dystrophy in Japan. “I want to talk with other DM patients and their families. I hope my friends will join me.” This was what Akane Hatano, the founder of DM-family, was feeling when she attended a lecture by a group of doctors and learned that patient registry was necessary for the development of therapeutic drugs.